Well thought I better update everyone. We got home from D&G in Stephenville last night and we were pooped. We took Benjamin to see Dr Stewart thursday and it was a great visit.
1. In all the other times we have gone down there, I have had to sit in the chair and hold Ben down while they ran the tests. WELL NOT THIS TIME!!! Ben walked in each room crawled in the chair and sat there like a pro all by himself. He didnt even fuss or yank or hit or pinch or anything when they put the testers in his ears for either exam. He just sat there like he did it every day, no big deal!!!!!
2. He stood all by himself on the balance exam!!!!
He was showing some good readings on that too, they werent all maxed out but starting to look more like a roller coaster and much lower.
Now, with all this wonderful compliance we saw some good test results.
1. He is starting to get some separation of sounds in his inner ear. It wasnt spiking all over the place and on top of each other. Mind you, he is way below the sound level capabilities he should be, but, his ear is starting to separate the sounds which we can see in his reproducing words we ask him to.
2. He is showing better spreads on cognitive thinking than he has ever shown.
Dr Stewart was very excited and has come across using a new (but old medicine) that he is using on about 100 other kids and he has gotten some awesome results with, amantadine (basically used to treat flu and parkinsons). They are starting to find that children with low immune systems have a tendency to cache this viruses injected into them or caught in places like the colon, nerve cells, fat tissue etc.... But, the important thing is, even though they are dormant they are causing inflamation throughout the CNS and they need to be kicked out. So, Dr Stewart is hoping that within 6 weeks we will see some huge gains for Ben. He said he was ready for Benjamin to start talking and gave me a script for therapy in ABA/VB and told me if they gave me any flack to let them know and he would write up anything else I needed.
I just want you to know, he is the most awesome person I have met in a Lonnnnnnnnngggggggggg time in the Medical profession.
So, keep Ben in your prayers and I will keep you updated on his progress.