UPDATE 12/10/03: Well it has been nearly a month so I thought I better update everyone. Ben is doing great!!!!!!!!!!!!! He is putting on weight (not that he was every skinny), his bowels are moving regularly (VERY IMPORTANT FOR A CHILD LIKE HIM) and he is REALLY starting to communicate his wants and needs more so than ever!! He will bring something to us to open for him or get out what he wants or show you what he wants or wants you to do. So, our task now is to help him understand to us his language to get all those things. He was so cute the other day when his therapist came out. He was sitting at the table and we told him Delys was here. He jumped up ran to the door, saw her, went outside to her truck and gave her a hug. She gave him a toy box with a handle to carry and he brought it to the front porch (he has just started carrying things a lot lately). He ran into a dilemma once he reached the steps because he had the box in his right hand (he uses it to help himself up the stairs). He stopped, looked at me and held the box to me, he was so cute because you could see him thinking, how am I going to get up the stairs with this in my hand? So, we showed him and told him to put it in his left hand and he smiled REALLY BIG and marched up the steps holding the box and took it right to his room! I cant wait to tell everyone when he starts talking!!!!!!!!!!!!! Let me tell everyone that eating 75-85% raw vegs/fruits and juicing the vegs also has CHANGED HIS LIFE. I truly wish and hope the Doctors would be more knowledgeable in the nutrition area, because all it has taken is Ben eating food that his body was designed to digest. In fact it must be something that the Drs are looking at because Ben’s ped said there was an article recently in the American Ped Assoc Mag that was talking about the relationship and importance of regular bowel movement in child with Ben’s problems. He couldn’t get over the fact that it was in a medical magazine! I told him I have know about it for 2 years!!!!!!!!!!!!!!!!!! Anyway, I will update in Jan again because we have found a Developmental and Behavioral Pediatric specialist at Scott & White that Ben is going to see the end of this month. I have high hopes, I was very impressed with talking to them over the phone.
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